Reps. Hudson, Carson Introduce Bipartisan Resolution to Support Americans Battling Rare Diseases

WASHINGTON, D.C. - Today, Congressmen Richard Hudson (R-NC) and André Carson (D-IN) introduced a bipartisan resolution supporting the designation of the last day of February as "Rare Disease Day."

There are around 7,000 rare diseases that affect about 1 in 10 Americans. They include conditions like Sickle Cell Anemia, Spinal Muscular Atrophy, and many others. Since 2009, Rare Disease Day has been observed in more than 100 countries as a means to bring awareness to these conditions, honor those fighting the diseases, encourage accurate and early diagnosis, and strengthen the search for cures. The passage of this resolution will bring greater awareness to that effort in America and around the world.

“Families impacted by rare diseases often face unimaginable challenges in getting the treatment they need,” said Rep. Hudson. “I'm proud to lead this bipartisan effort to raise awareness and support North Carolinians battling rare diseases."

"I am honored to join my colleague, Rep. Hudson, in recognizing the millions of Americans bravely battling rare diseases and celebrating their courage," said Rep. Carson. "It's also fitting that we are introducing this resolution during Black History Month, since Black Americans are particularly vulnerable to rare diseases like Sickle Cell Anemia and Sarcoidosis. I hope our resolution shines a light on this struggle and strengthens the search for treatment and cures for all Americans, living with rare diseases."

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